Sometimes it feels as though the barrier between neurodivergent and neurotypical minds is so vast that we are speaking entirely different languages. That is not an exaggeration; it is the closest description I have for what this feels like.
I say things clearly. Directly. Precisely. I do not hint. I do not exaggerate. I do not use words casually. If I say something, it has already been analysed from every angle before it leaves my mouth. The phrasing is deliberate. The meaning is intentional. And yet when I speak, what I say is either not believed, watered down, or quietly dismissed.
Neurotypical communication feels very loose, flippant – words like “struggling,” “overwhelmed,” “support,” “care” are used so casually that they have lost weight. So when I use them with full intention, they land as if they mean nothing. The trust level feels vague, Inconsistent and Conditional. If I speak calmly, I am not taken seriously. If I speak with intensity, I am dramatic. If I withdraw, I am fine. What exactly is the acceptable format for being heard?
I question whether people genuinely do not process what is being said, or whether they do not care enough to sit with it. Am I that insignificant? How many times can I state the same reality before it is acknowledged as real? Does something catastrophic have to happen first? Do people want me to completely break down? Do I have to die for people to finally say, “Maybe he meant it”?
If I ever died by suicide, nobody could claim I had not documented the trajectory. The blogs are there. The evidence is there. I have written about masking, about erosion, about exhaustion, about the cumulative damage of not being understood. I have fought for clarity publicly, privately, and professionally. I have structured my words so they cannot be misunderstood. And still, nothing changes.
So I turn the question inwards – Is this my fault?
For those who do not know me, is it the way I look? A 6’3 mixed-race man who presents confidently and articulates his struggles clearly. Does physical presence cancel out my vulnerability? Does my confidence invalidate pain? Do people see composure and assume resilience? Do they mistake controlled delivery for strength?
And for those close to me (friends and family), do they only see the façade? Do they hear the words but not register the meaning? Because I refuse to endlessly repeat constant triggers, because I cannot handle cycles of false reassurance followed by inaction, does that make me less credible? If I do not keep shouting, do I disappear?
There are moments when I have to actively fight the thought that the pattern of dismissal is orchestrated, that it is intentional. I have to give my head a wobble and remind myself that this is trauma and exhaustion speaking – and not logic. I have to fight to want to keep fighting. And still, the blame circles back to me – it’s not their fault! I should have explained it better. I should have reacted differently. I should have been louder. I should have been quieter. It is always my responsibility to adjust.
This life is lonely in a way most people do not understand.
I survived by masking. Constantly. Strategically. I took on strong characters to mask, because I had to – because of how I look, because of racism I experience, because vulnerability in my body has never been safe. I learned early that I had to present controlled, composed, and capable. I chose not to become a bully. I chose not to harden into an aggressive reactor, as I would be locked up. In doing this, I believe I have been bullied and used in ways people would never imagine (undermined, subtly gaslit, dismissed) precisely because I do not fit the stereotype of someone who could be vulnerable.
I never saw myself as a victim. Not until I understood how masking works. Not until I understood the neurological toll of constantly suppressing natural responses to survive socially. I mask to the point that I do not know who I am without it.
I help people. I advocate. I create art that moves people. I protect others because it is the right thing to do. I know I am doing good. But beyond serving others, what is this life? What is left for me beyond the constant fight and managing pain?
The world is beautiful. I see beauty intensely – in people, in structures, in art, in potential. That is the cruel part. I see what humanity could be. And then I have to deal with surface-level communication, disingenuous language, and the gap between words and action.
I do not understand why clarity is treated as confrontation. I do not understand why precision is treated as aggression. I do not understand why directness is read as a threat.
This is not a cry for help in the way that phrase is categorised. This is a statement. This is what my lived experience feels like.
Art became my language because spoken words were clearly not listened to. Blogs are my documentation because conversations are ignored. I have spoken about the sensory toll, the mental toll, and systemic gaps. I have described how high-masking individuals (especially men of colour) fall through frameworks that were never designed with us in mind.
I am not asking to be rescued, I am asking to be understood. I just don’t understand why this is the hardest thing to do?
The saying one doesn’t know what a person is going through until they walk in their shoes seems appropriate here. Why do people/society judge others based on appearance? How often is that method accurate? We all can do better. Our neighbourhoods communities, cities, countries, and beyond are big enough for everyone. Let’s open our eyes, hearts, and minds and show our empathy, kindness, understanding, and support so Dez and others feel seen, heard, understood, supported, and valued.